Charlie Gard parents given more time to say goodbye to terminally ill son


Charlie GardImage copyright
PA

Image caption

Charlie Gard’s rare disease has left him unable to cry

Charlie Gard’s parents have been told they will be able to spend more time with their terminally ill baby.

Chris Gard and Connie Yates had been expecting their 10-month-old’s life support to be turned off on Friday.

Great Ormond Street Hospital has since disclosed it is putting plans in place for Charlie’s care to allow his family to spend more time with him.

On Tuesday, Charlie’s parents lost their final legal appeal to take him to the US for experimental treatment.

Judges at the European Court of Human Rights concluded that further treatment would “continue to cause Charlie significant harm”, in line with advice from specialists at Great Ormond Street.

He has a rare genetic disease as well as brain damage and is believed to be one of 16 children in the world to have the condition, mitochondrial depletion syndrome.

Image copyright
PA

Image caption

Connie Yates and Chris Gard raised more than £1.3m for experimental treatment for Charlie in the US

Doctors have said he cannot see, hear, move, cry or swallow.

Charlie has been receiving specialist treatment at Great Ormond Street Hospital since October 2016.

‘Massively let down’

His parents said they had been denied their final wish to be able to take their son home to die and felt “let down” following the lengthy legal battle.

Alongside a video posted on YouTube on Thursday, Charlie’s parents wrote: “We are utterly heartbroken spending our last precious hours with our baby boy.

“We’re not allowed to choose if our son lives and we’re not allowed to choose when or where Charlie dies.

“We, and most importantly Charlie, have been massively let down throughout this whole process.”



Source link

Leave a Reply

Your email address will not be published. Required fields are marked *